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Saturday, January 31, 2009

Sun at home


Thank you for your visit Veena, It was lovely to have you here in the breakfast, but sorry to did not stay awoke until you left, I dived in a deep sleep only woke up in the Afternoon. Nevertheless, even without sunlight we managed to go out for half hour to do some exercise :)

Now, we tasted a delicious Dahl meal cooked by Veena, and the day is over. As you see the days around here are much shorter than in other latitudes. You can say why going out to feel the sunshine when it is rising all the time inside doors.

Bye

Friday, January 30, 2009

Symbol of Poland


Ola,
The life is still rolling in a slow pace, Regarding to me at the moment my best friend is the bed. I love it so much, even more during the day time when is all open and free for me. Of course this speed of life cannot be applied to Justyna, she did so many things today, even organised a dinner to our friends Pajo, Kaska & Rafi. It was again a lovely evening and I am sure our beauty Oliwka if she was not sleeping by now would agree with me.
I hope tomorrow I will feel more energetic to go for a small walk outside.
cześć

Thursday, January 29, 2009

Responsible team


We still passing through the hangover, today is the famous second day after the chemotherapy session, when all the substances are all around the body, and then the discomfort, the headache and tiredness is more than ever, Even though I obligated myself to go outside in the shy sun shining afternoon for an hour to exercise my legs, because I was starting to fell some cramps due to the excess of time in bed. After backed home I had a nape and finished the evening with a nice meal in the company of our friend Mike.

The picture on top is showing what my eyes saw in the chemotherapy suite last Tuesday. The nurse in the deep background was the one responsible for my account :) He could not forget any drug and liquids, all in the right order. He was also very friendly. After this 6 sessions, even if I still do not know whether I need to go back or not, I already would like to set my thanks for all your commitment to do your best not only with me but to all the patients, I never heard any complain, nothing. Even though and to be honest I would prefer to be away from this 4 West B ward as long as possible, I am sure you will understand.

Thank you

Wednesday, January 28, 2009

Life is wonderful

Today it looked that all the family got affected by the chemotherapy, all of us toke advantage to sleep more hours than it is usual. also the reason is Olivia does not get too much sleep in the night.

But apart of that we are felling well so far, The teas are helping us to keep away the sickness. The good news is we have confirmed our trip to Poland from 19 until 28 of February, It will be good to Olivia meet the rest of the family from the Polish side, I just need to get very warm to escape the frozen temperatures.

I am still thinking to myself what should I do after the tempest past, I been thinking what is my true vocation, I am still dream to be a successful man, when I am saying this is not thinking about money, just to be happy with what I am doing. It is something that I still have a lot of time to think and rethink.

As you notice, today I chose a different approach, instead of a picture of the family I decide to posted someone that we, but special Justyna love it. The lyrics are simply beautiful and the person transmitting such a good energies. Let us and you fill up the hearts with all this feelings at least during the time of the song. The ones who do not liked please sorry and consider yourself out of this exercise.

Kisses

Tuesday, January 27, 2009

Chemotherapy-Session 6

Olá

We all have reasons to celebrate this day, Apparently the chemotherapy sessions come to the end, Even knock down I know that I have reasons to be happy. Hopefully next week I will feel more restful and I will enjoy the moment and give the importance to this days that they deserved. It was four months always with the timer for the chemotherapy in my head.

It was a long and very boring session, most of the things that I planed to do I could not do it because of lack of concentration, I only watch a movie with British humour, I could not stop laughing :) the nurse was laughing also because of me. I believe my headphones did not allow me to listen my laughing. I managed to do one brain test and it was encouraging, I still know how to do a simple algebraic calculation, it is promising. In the morning I had the visit of John and Maria, we could speak about the life and it was a good way to start the day, the visits continued with Pajo, We updated our conversation, both had been in Portugal and since then we have not seen each other.

Today, unfortunately the masseur was very busy, I asked her to come but she could not come to me side and relax my feet :( Nevertheless a Voluntary gentleman sat close to me and spoke about his experience and I set my feelings, he also had Cancer and now is passing is thoughts to other patients, he reinforced that this Hospital is one of the best, they do not put restrictions of money to help the patients, even a cancer patient beside me with probably around 70's years old also told us that he had always the best he could. Later I spoke to a nurse he and said that before he moved to the Public system he worked in the private system and the medicines there were not better, in the private they did not give the most expensive medicines that are giving in Royal Free Hospital.

Another nurse responsible for the ward confirm also my good blood tests, my white cells in the blood are very much at the same level that when I started what is very good, I am not so expose to the opportunistic diseases that we thought.

In the afternoon I toke an hour to watch pictures and movies there were few ones that almost brought out few tears in the privacy of my headphones, I will show some of those here today.

Olivia in Lagoa, shining as the Sun;



Praia de Albandeira; Praia do Estaquinho


Praia da Nossa Senhora da Rocha; Praia Nova


To the attention of the surfers, this is the best right in the Algarve; Praia de Armacao de Pera

Monday, January 26, 2009

Busy work


Well the working days started very well, today I performed my last scanning of this trial, it was the DOTA-NOC after I did already some weeks ago the DOTA-TATE. The first one is a substance that is injected in the body and is expected to show all the lesions that not light up by the DOTA-TATE. All this scanning are performed in the PET-CT scanning.
After I finished the examination in the morning the doctor straight looked for the results and told me that his first impression is that my body do not have any more Cancer apart of the two metastases in the Liver. Also the good news is almost the confirmation of havinng "only" this two metastases and not five as it was in the beginning of the chemotherapy :)
In the end, the doctor thank you for my help, it looks that this new substance that it was injected in me and they want to be used normally in all patients with neuroendocrines although readiolabelled is more accurate and do not miss the disease, special when scanning small tumours or tumours which have the potential to be more aggressive. In my scanning the disease was very highlighted as all of us pretended, nothing was missing in the picture.
Back home in the afternoon I decided to rest and I slept for four hours. Now I am trying to get some sleep, It will be difficult because of my excitement, Tomorrow it might be the last chemo session, It will be all day fighting against this silent intruder but I cannot wait to finished the day. I will take with me some movies and books to break the tedious. Also I will try to do some maths and language tests to practise my frozen brain. Additionally I also organized fruit salad and Polish soup that Justyna cooked to take with me. This things is the only things that I can eat with pleasure in this days. I think it is psychological, but in the day I am there I cannot stand bread and fish.
So, see you tomorrow

Sunday, January 25, 2009

Back to job

Hello,
Lastly it came to an end the Holidays, firstly Portugal now Sofia and Julian sharing the weekend with us. To be honest I feel more happy than sad for this end, You can called anxiety, I really want to go and do whatever I can and quick to fight the Cancer. I think only after I can focus in other things, such as go back to work.

Meanwhile I have the advantage and lucky to be all the time close to Oliwia and Justyna :)

So Sofia & Julian left already London, after another big brunch.

As I said the Holidays is over, thus, tomorrow I will need to be very early in the UCL Hospital to have a PET DOTA-NOC. IT is something new, it is still in a trial this type examination, It pretends to find all small Neuroendocrines Cancer I might have spread in the body. It will be all the morning in the Tunnel :)

At least because I will be a Guinea Pig or Cobaia I will have a free lunch and transports paid.It ill be my contribution for the Humanity Healthy

Lastly, the pictures above today it is related to another moment of us in Portugal, when we went visit STAP, my former job in Portugal, it was lovely to see almost all the friends and colleges once I left there when I decided to move to England. Happy to see all are very well.Thank you also for your support.

Kisses